Patient Stories

Juliana McClellan

Juliana McClellan has always been on top of her regular Pap tests and cervical cancer screenings, not only because it is important for her own health, but also because she has a family history of endometriosis, a common gynecological condition. That’s why when she experienced a longer-than-usual menstrual cycle with heavy bleeding, she assumed endometriosis was the cause. However, in November of 2021, a Pap test revealed that a mass on her cervix was actually the cause of the bleeding. Shortly thereafter, Juliana was diagnosed with Stage 4 cervical cancer.

After her gynecological oncologist, Dr. Jacqueline Morgan, referred her to Central Care Cancer Center in Emporia, Juliana found herself in an exam room, being told that she would need immediate radiation treatment. She was scared, confused, and worried. “The first 15 minutes, I was just trying to wrap my head around everything, like how to tell my kids,” Juliana says, “Thankfully, my fiancée was there.”

A 35-year-old mother of three boys and engaged to be married to the love of her life, this seemed like an impossible situation, one that she was not ready to overcome. That was until she went outside, took a moment, and had a conversation with Oncology Assistant Mandy Springeman. “Mandy, just from day one, she held me and cried,” says Juliana, “You know, she’s a cancer survivor too and being able to have somebody in that moment when I was diagnosed, tell me that I was where I needed to be and that I would be okay, was just music to my ears.”

Central Care Cancer Center is dedicated to keeping cancer care close to home. Our expert team of physicians and staff, coupled with the latest technology and treatment techniques, allow us to provide an unmatched level of care to the Emporia area. At Central Care, the patient is the top priority.

Within a week of her initial diagnosis, Juliana began receiving radiation treatment to her pelvis in order to stop the bleeding. Less than a month later, she also began chemotherapy. Aside from losing her hair, she didn’t experience many difficult side effects. “I, of course, did not feel great,” she says, “But, aside from exhaustion and joint and bone pain, I didn’t really get sick. I didn’t experience those horrible side effects that some do. I feel very blessed that we were all able to manage my symptoms very well.”

Juliana continued chemotherapy treatments every 21 days until her last treatment on April 1st of this year. Due to the fact that her PET scan on March 15th was clear of disease, she no longer needs chemotherapy and remains on a maintenance schedule in which she receives the antibody, Keytruda, every 21 days. Keytruda helps the immune system detect and fight cancer cells, which is important in this stage, in order to prevent Juliana’s cancer from returning. She credits the management of her symptoms and the success of her treatment to Dr. Elshami Elamin, medical oncologist at Central Care. “I appreciate the treatment plan he put together, as I am now NED [no evidence of disease], and feel that was based on his treatment plan and my own personal strength,” says Juliana.

Not only did she rely on her own strength, but she also relied on the strength of her family and community members during her battle with cervical cancer. Her sons, Brayden, Samuel and Maddox, remain beacons of positivity for her, and she can’t wait to marry her fiancée, Nathan, in June. “He’s amazing, he’s really been my rock,” Juliana says.

As a citizen of Council Grove and native of Kansas City, both communities stood by Juliana during her cancer journey. “I have a fantastic support system,” she explains, “Our friends and family that live in Council Grove and Kansas City, plus our whole community—I mean, I can’t tell you how many people in Council Grove were so very active in some form of my care during these past few months.”

“My mom, she practically moved in with us over this time to help with the kids and everything,” Juliana adds, “My grandma, she is a cancer survivor as well, so she’s just a big pusher in positivity and prayer, and just overall amazing. I can’t say enough things about the family, they’re top-notch.”

Receiving a cancer diagnosis and experiencing the side effects of treatment can feel very defeating. However, Juliana had an army of supporters and a team of physicians who helped lift her up during this difficult time. “It just makes my heart so full,” she says, “I feel so very loved, and you know, it picked me up when I was in a really dark place in the beginning.”

When asked what advice she has for others who might receive a cancer diagnosis, Juliana immediately says, “Stay off Google. Stay as positive as you can. I know it’s hard in the moment, but that really was a game changer for me. Just staying positive,” she goes on, “Oh, and I found an online support group. It was a cervical cancer support group and those women helped me through my darkest days, answered questions that nobody else really could answer for me because they were all in my shoes in some form or another.”

Remaining positive during her treatment became extremely important to Juliana. Thankfully she had the help of Mandy, as well as Nurses Brooke Wilson and Megan Beitz. “I really don’t have enough wonderful things to say about the three of them,” she says, “They’ve been able to answer every question, they went over every scenario with me, just held my hand when I needed it and they, too, were all very positive. You know, nobody was doom and gloom. I was exactly where I needed to be and they were exactly who I needed in my corner. I’m so very blessed.”

Moving forward, Juliana will continue her antibody treatments every 21 days for the next 2 years. Along with her on this maintenance schedule is, what Juliana calls, her “dream team”: Mandy, Brooke, Megan, Physician Assistant Ayesha Ahmed and Medical Oncologist, Dr. Anis Toumeh. “Dr. Toumeh is absolutely amazing and I’m so happy he is taking over my care,” she says, “I love his personality, his fashion and his willingness to talk to me. I think he’s just brilliant and I wholeheartedly trust him.”

According to the American Cancer Society, getting regular screening tests, such as the HPV test and the Pap test, is the best way to find cervical cancer early. Early detection greatly improves the chances of successful treatment. “Annual checkups are so crucial,” says Juliana, “Your health has to be a priority.”

Due to Juliana’s enrollment in Kansas’s Early Detection Works Program (EDW), she was able to get screening tests for breast and cervical cancer, including clinical breast exams, mammograms, pelvic exams, Pap tests and HPV tests. The EDW Program also covers diagnostic tests if a screening test shows a potential problem. Visit kdheks.gov/edw or call toll-free 1-877-277-1368 to learn more about the program or to find out if you are eligible.

Pete Krier

Pete Krier really knows how to throw a party.  The Claflin, Kansas native just turned 65 and beat what’s considered Stage III colon cancer.  So Pete hosted an “I beat cancer” party, and roughly 500 friends, neighbors, family and community members gathered to celebrate Pete’s victory, his birthday, but also were educated on the importance of getting screened for colon cancer.

It was September of 2018 when Pete found himself at Clara Barton Hospital in Hoisington. He had been fighting an infection in his legs and was anemic. Dr. P.J. Stiles ordered a colonoscopy. That’s where five to six tumors were found inside his colon. Pete then went on to have surgery in October to remove a big section of his colon, where Pete proudly says, “I got a picture of it if you want to see it.”

But the good-natured owner of Pistol Pete’s Nuts and Bolts in Great Bend wasn’t done yet. Due to cancer found in his lymph nodes as well, Pete was referred to see Dr. Mark Fesen, Medical Oncologist at Central Care Cancer Center.  In January of 2019, Pete began chemotherapy treatments that occurred every other weekend for six months.

As far as side effects go, Pete says, “You wouldn't believe it but I got hyper when I was on chemo.  I couldn't sit down. It was crazy. I couldn't sit still, couldn't shut up, nothing. I got a lot done, really.”  Except housework, Pete’s wife Lois adds jokingly.

Pete’s journey in beating colon cancer also came with its share of complications.  There was a catheter issue, being unable to urinate properly and wearing a colostomy bag for just over a year. But through it all, Pete says “you can’t just give up”.

According to the American Cancer Society, colorectal cancer cells sometimes make substances called tumor markers that can be found in the blood. The most common tumor marker for colorectal cancer are carcinoembryonic antigen (CEA). Blood tests for these tumor markers can sometimes suggest someone might have colorectal cancer, but they can’t be used alone to screen for or diagnose cancer. This is because tumor marker levels can sometimes be normal in someone who has cancer and can be abnormal for reasons other than cancer. Tumor markers are used most often along with other tests to monitor patients who already have been diagnosed with colorectal cancer. They may help show how well treatment is working or provide an early warning that a cancer has returned. Levels of CEA higher than 20 ng/ml are considered very high. Pete was up to 35 ng/ml before his surgery and now is at a 2 ng/ml, which is normal.

Being close to home for Pete’s chemo treatments was also key to his success. Evidence has proven that going through cancer treatments near loved ones and close to home have improved outcomes.  Central Care Cancer Center is dedicated to keeping cancer care close to home. They have facilities throughout Kansas, mostly in rural settings, including Great Bend.  Central Care Cancer Center is dedicated to making the patient their top priority by offering comprehensive cancer care including chemotherapy, radiation therapy, financial counseling and other supportive services all under one roof.

For Pete’s “I beat cancer” party, he thought it would be kind of selfish to just have a birthday party. “What I wanted was a thank you party for everybody's prayers. How do you pay someone back for their prayers?  We had everyone and their dog praying for us and helping us out. And I thought while we're throwing a party, why don't we go an extra yard and see if we can prevent someone from having to go what we went through, and a lot of other people are going through.”

They got the word out about the party, but Pete and his wife Lois did not expect the nearly 500 people that turned out, including Dr. Stiles and Dr. Fesen, who spoke at the event.

“We were just trying to help some of our family and friends, and prevent them from having cancer.  This was a good reason to get together instead of at a funeral service,” said Pete.  Unfortunately Pete and his wife Lois have lost many relatives and friends to a variety of cancers.

Pete’s friend Karen added, “(The party) was an educational moment that opened a lot of eyes.  We are all here for each other and we need to be here to support each other. The party got a lot of people thinking and talking.  I was just moved by everybody who got up and spoke.”

March is National Colorectal Cancer Awareness month. According to the American Cancer Society, overall the lifetime risk of developing colorectal cancer is about 1 in 23 for men and 1 in 25 for women. And on average, there’s a 1 in 3 chance that a person develops a form of invasive cancer.  Pete adds, “if there was 500 people at the party, say 175 people may have cancer now and don’t know it, and if we could save those 175 by encouraging screening, what would that mean? (chuckling) I’d get a door in heaven!”  Amen Pete. Amen.

Kevin Barrett

Last year, two days before Christmas, 57-year-old Kevin Barrett woke up in the hospital with no recollection of the ambulance ride, the MRI he received at Newman Regional Health or the surgery he had on his brain at the University of Kansas Medical Center in Kansas City. He woke up to find out that he had brain cancer.

Kevin, an Emporia native and father of three boys, had been experiencing headaches and migraines for years. “I just thought, you know, they were just headaches,” he says, “Then I had some migraines just on the left side. And it just started getting worse, but I’ve been going through this for years and years.”

However, one day Kevin had a migraine so bad that he decided to take time off from Hopkins Manufacturing, where he had worked for 27 years. “The next thing I know my son and brother called the ambulance on me, because they said I wasn’t talking right, I didn’t know what I was doing,” Kevin goes on, “I don’t remember going to Newman. I don’t remember going to KU. All I remember is waking up at KU and I had surgery on my head.”

Kevin had undergone brain surgery to remove cancer from the left side of his brain. His surgeon said that it looked like a 3-inch golf ball. Kevin says, “He showed me the picture of what my brain looks like now – there was absolutely nothing, you couldn’t see anything there. So that gave me more hope.”

After his surgery and a 15-day stay at the hospital, Kevin told the doctors that he wanted to do his treatment at home in Emporia, rather than driving to Kansas City every day. So he went to see Dr. Elshami Elamin at Central Care Cancer Center in Emporia, where he began radiation and chemotherapy. “Every morning I had to be here at 8 Monday through Friday, and when I got done here, I went back home and I took all my chemo pills and all my other medicine,” Kevin says.

“Central Care has been nothing but respectful and very nice to me. Every one of them. And if I have any questions, I have their personal numbers to call.”

Central Care is dedicated to keeping cancer care close to home. Since this was important to Kevin, it was important to his recovery. Central Care makes the patient their top priority by offering comprehensive cancer care, including chemotherapy, radiation therapy, financial counseling and other supportive services all under one roof. Kevin says, “I’ve done everything Dr. Elamin and Justin [Branine, Radiation Oncology Manager] have asked of me. Everything. And that’s helped out a lot, it really has.”

According to the American Cancer Society, there is a less than 1% chance that a person will develop a malignant tumor of the brain or spinal cord in his or her lifetime. Kevin Barrett is part of this .6 percent, but he’s getting through it with the help of his family, friends and oncology team at Central Care. “At first I didn’t want to come here,” Kevin explains, “I ain’t going to lie, because I was nervous. And then once I got here they were so nice, he [Dr. Elamin] explained everything to me and I think it’s helped me out because I think so far I’m doing really good.”

Kevin’s 19-year-old son, Chris, has also been a huge help to him throughout his battle with cancer. “He’s been a lifesaver,” he says, “For being that young, he really shouldn’t go through all of this, but he’s dealing with it pretty good. He’s been a god-send.”

According to Kevin’s latest MRI, there has been no cancer reoccurrence. However, Dr. Elamin will continue to monitor Kevin’s brain with MRI scans every three months for the rest of his life. “I’m hoping and I pray that everything is good,” Kevin says with a smile, “Because I feel good. I really do. Everybody looks at me like ‘Are you sure there’s nothing wrong?’”

Through everything, Kevin has remained strong and hopeful. “You’re going to be scared, I know,” he says, “But just don’t give up because there’s always hope. I’m not giving up.”

According to the American Brain Tumor Association, more than 700,000 Americans are living with a brain tumor today. While brain tumors affect a significant portion of the population, they are still relatively uncommon. In 2021, more than 84,000 people will be diagnosed with a brain tumor, compared to the more than 280,000 women who will be diagnosed with breast cancer.

When asked what he would tell someone who might be diagnosed with cancer, Kevin said, “First thing I’d tell them is don’t be scared. Just don’t give up and just fight. And do what the doctors tell you. Just because you’ve got it, doesn’t mean you can’t beat it. You never know in life what might happen.”

Vicki McDowell

As a breast and liver cancer fighter, 73-year-old Vicki McDowell is the epitome of positivity.  “I am surviving.  You see, there’s this one thing—cancer doesn’t define who you truly are.”

It all started in 2004. Vicki had a mammogram where her doctor discovered a lump and diagnosed her with breast cancer. She had it removed and began radiation treatment, but in 2006, her doctor found another lump in her breast. This time, she had a mastectomy and for six years, Vicki was cancer-free.

That was until 2012, when she noticed pains along her mastectomy incision. She got a CAT scan which showed multiple spots in her liver, and was referred to see Dr. Mark Fesen at Central Care Cancer Center in Great Bend, who diagnosed her with Stage 4 liver cancer. For the first few months, Dr. Fesen had Vicki on the chemotherapy medication Taxol while he investigated the source of her liver cancer. “Dr. Fesen, being the way that he is, wasn’t satisfied with the answers,” Vicki explains, “He kept sending out biopsies and blood work, everything to various colleagues. Finally, a lab in California found it. I was HER2-Positive.”

HER2 is a protein that promotes growth on the outside of all breast cells. Breast cancer cells with higher than normal levels of HER2 are called HER2-postive. These cancers tend to grow and spread faster than other breast cancers, but are more likely to respond to treatment with drugs that target the HER2 protein.

At the time she found out about her liver cancer, Vicki’s husband of 51 years, Jim, was living in Oklahoma City waiting for a heart transplant. The couple was only able to see each other on weekends for lunch in Wichita, and with the impending heart surgery, Vicki was nervous to tell Jim about her liver. “At first I didn’t tell him because I knew,” Vicki says, “I knew that he would quit and he was already pretty high up on the list for a new heart.”

However, Jim could tell that something was wrong. At one of their Saturday lunches, Vicki finally told him, and he broke down in tears. “I thought, ‘I’m waiting for a heart transplant and you’re fighting liver cancer,’” Jim says, “How much worse could this get?”  Jim did successfully receive his heart transplant in December of 2012.

Vicki continued with the Taxol regimen, but Dr. Fesen noticed that her progress was starting to plateau and wanted to try something else. He explored and suggested participating in a clinical study involving the chemotherapy drug Capecitabine, to which Vicki agreed. “I have huge respect for Dr. Fesen,” Jim explains, “Because with my heart issues that I’ve been through, I’ve met a lot of doctors. What I really admired about him, and still do, is his determination to find an answer like he did for Vicki.”

While she was on Capecitabine, she had a few side effects, but handled it pretty well for four years. However, Vicki’s tumor markers started rising again, so Dr. Fesen suggested another clinical study that involved the chemotherapy drug Kadcyla.  This clinical trial required a trip to Overland Park every three weeks, which Vicki and Jim did not feel up to, so they opted out. This did not satisfy Dr. Fesen, so he found a way for Vicki to get the trial drug Kadcyla at Central Care in Great Bend, which was closer to Vicki’s home in Lucas.

Not only did Dr. Fesen become a pillar of Vicki’s cancer care, but so did Central Care as a whole. “They’re very accommodating,” says Vicki, “It’s like family when you go there.”

Vicki is also a huge advocate for clinical trials. “There’s a very good chance that I wouldn’t be here if there weren’t clinical studies and programs,” she goes on, “I’m just so thankful that there have been. The first one I did, I was just thrilled to be able to do it because whatever happened to me, could maybe benefit someone else.”

It is important to be aware of all cancer treatment options.  That includes considering taking part in a cancer clinical trial. By being a part of a clinical trial, a patient may not only receive benefits from participating, but help advance cancer research, treatment and prevention, and possibly assist in finding a cure as well as help out future generations.

For Vicki, deciding whether or not to participate in clinical trials is a no-brainer. “I don’t see how it is a losing proposition,” she explains, “To me, it’s a win all the way around because you’re winning for yourself and you’re winning for other people.”

After several months of taking the trial drug Kadcyla, Vicki started developing some worrying side effects. She is now going to try Letrozole, an immunotherapy drug, along with Herceptin, a chemotherapy drug. Switching regimens for the fourth time and round three with cancer hasn’t lowered her spirit at all. “We always like to look at the positive side of it,” Vicki explains, “You have to keep yourself positive in your thinking to help fight this.”

Faith and positivity have been significant anchors for both Jim and Vicki. “You find out, when you step into these shoes that we both walk in, that you aren’t in control of your life,” Jim says, “I read a book and it said, ‘At the end of myself, there’s Jesus.’ And so that’s what you have to do. Trust Him to see you through.”

Secured By miniOrange